Thursday, July 26, 2012
~3/1/11 Today was the day we went to Orlando so that I could be assessed and measured for a powercha
Being a visual and verbal chronologue of my peculiar life, foremost my research interests death and the anatomical body and travels and people cheap new zealand car rental I've met in pursuit of same; my collecting interests fossils, postmortem photographs, weird news, and new acquisitions to my museum ; and (reluctantly) my health, having been diagnosed cheap new zealand car rental with MS in 1990.
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Chris Quigley has been reviewing morbid books since receiving an MA in 2007 from Georgetown University, where she has worked since 1986. As of June 2009, she is on long-term disability leave. She delivered the keynote address at the first Museum of Funeral Customs symposium (Springfield, Illinois), consulted with the producers of the National Geographic Channel s Mummy Road Show, and authored 6 morbid books of her own - Death Dictionary, The Corpse, Modern Mummies, Skulls and Skeletons, Conjoined Twins, and Dissection on Display - all published by McFarland Co.
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~3/1/11 Today was the day we went to Orlando cheap new zealand car rental so that I could be assessed and measured for a powerchair (motorized wheelchair). This big change was initiated by me and precipitated by a fall from my scooter in mid-January (see my posts of Jan. 21st and Jan. 24th ). I had swiveled the seat and leaned my head on my arms on a table for a little rest - as I sometimes do - and when I raised up, the spasticity in my legs was so strong that I was pulled forward and ended up on the floor with my legs underneath me. With some pain, but no bruising and little swelling, it was several days before I went to my doctor and found out I had fractured my tibia. After an aborted trip to an orthopedist who refused to treat me because I could not get onto his x-ray table unassisted , and a weekend spent wearing a splint from ankle to mid-thigh that was put on over the course of 8 hours at the emergency room, I finally (at the office of a much kinder orthopedist) had a cast put on my lower leg. After several weeks, during which I've gotten more - but not entirely cheap new zealand car rental - self-sufficient at using the bathroom at night and getting dressed, the cast is due to come off in 2 weeks. Even though I now wear a seatbelt on the scooter, a powerchair will be more secure and in many ways more comfortable. It will force me to have better posture, but will also allow me to have a little catnap whenever I like (check out the tilt, recline, and leg lift features here ). When I sent a similar link to my friend Cris, she said, " It looks like you will be able to leap tall buildings in a single bound on that thing! " I should have it in about a month. ~12/3/10 Sorry for the big gap since my last entry. Things have been relatively stable and I've finally cheap new zealand car rental worked out a routine to get the most productivity out of my day. When I watch TV at night (usually a 10pm program), I use this "Cat's Paw" hand exerciser that my yoga instructor recommended - it's fun! The weather here has changed (high of 70 during the day, low of 40 at night), but a little bit of a chill rather than too much heat allows me to move a little better. I got an e-mail from the British journal The Lancet asking me to post a link to their site about M.S. It is very informative, so I have done just that (above). ~8/12/10 To know me is to understand that I don't like to talk about my health (which is no doubt why I update this diary so infrequently) and that my reluctance does not stem from denial. I think it's because having cheap new zealand car rental to live with MS makes me strongly opposed to the idea of devoting any more conscious time to it. Beyond a concerned "How are you doing?" my eyes start to glaze over and I'd rather be talking about anything cheap new zealand car rental else. A friend who was over the other night suggested that I do a 2nd blog on the subject of MS, and was very surprised to learn that that was one of the last things I would ever do. I want to be seen as a woman with many interests and a talent for writing about them who happens to have MS, not as a woman with MS who happens to be able to write well about her many interests. Ask me about my blog, not how my last infusion went. ~5/6/10 Oops. When Del was driving me home in the van after I met some friends cheap new zealand car rental for our weekly Scrabble games, I slid off the seat of the scooter and became wedged in between the scooter and the front seat of the van. My legs were doubled up, but I was able to relax and not tense up, so the position was uncomfortable but not painful. We were less than a mile away, so we hurried home and my Mom and Del repositioned the scooter and lifted me under the arms to put me back on it. I have an ongoing antagonistic relationship with gravity, but no lasting effects from this incident. Meanwhile, I've been meaning to describe the way I keep my mind occupied instead of focusing on lifting up my legs, which I cross over my lap one at a time while on said scooter to put my shoes and socks on: I spell words backwards - whatever comes into my mind, complete with spacing, cheap new zealand car rental capitalization, and punctuation, for instance "y-e-l-g-i-u-[cap]Q-[space]-e-n-i-t-s-i-r-h-[cap]C." Strange, but it usually does the trick. ~3/17/10 Things are steady on the health front, but over the last month I've had a flurry of news about MS treatments, so I thought I'd share the links. The National MS Society offers a fact sheet about the newly-released oral symptomatic medicine for improvement of walking in people with MS, Ampyra . Other medications pending FDA approval are listed on page 6 of the NARCOMS Newslette r. MS patients benefit from stem cell therapy and occasional reader Wendell wrote to tell me that (largely unreported) research in the U.S. and Germany indicates that people taking Tysabri have 6-7 times more stem cells in our blood. There is growing clinical evidence that medical marijuana reduces the spasticity and other symptoms of MS. Reader Chase pointed me to this site that discusses the health consequences of using aspartame , including anecdotal evidence of onset and worsening cheap new zealand car rental of MS symptoms. It is known that MS symptoms subside during pregnancy , and researchers are studying the possible benefits of hormones - including estrogen and progesterone - on the disease. ~2/18/10 Far fewer meltdowns now that I am leading a less stressful life. I did have a cry after coming down with a cold last weekend, because for the first 2 days it completely amplified the symptoms of the MS, so not only was I miserable with an alternately runny and stuffy nose (no cough, thank heavens), I was frustrated by moving even more slowly than usual and having my legs fly out of control every time I did so. I'm a firm believer in Zicam, and that brought the cold under control pretty quickly. It's almost gone - though I still sound a little nasally. ~12/30/09 She has not complained about preparing my meals, helping me in and out of the shower, or doing my laundry, but my Mom did make the tongue-in-cheek suggestion that I purchase this item for use as a bib! ~12/5/09 Bringing you up to date at last, I have gotten quite comfortable cheap new zealand car rental in my new surroundings and things have fallen into a routine. I usually check my e-mail and the weird news first thing, and may or may not ask for some tea or hot chocolate (I don't eat breakfast). My Mom opens my window shades and makes my bed. With my ceiling lift, I am nearly self-sufficient getting in and out of the shower. I do yoga in class T and Th and on my own the other days. I start my blog post, break for lunch (prepared by Mom) at noon, then finish that and do some other writing (my next book, book reviews, and right now peer-reviewing a journal article). I intermittently and rather obsessively check my e-mail (I've got at least a half-dozen games of Lexulous going) cheap new zealand car rental and more weird news, and never quite get caught up with all the things on my list. We have dinner at 6:30pm, while watching the national news, and the evening is up for grabs - a lot of TV, often in the background while I research a future blog post, some reading, maybe some word games with Mom, etc. She has to close my shades and turn down my bed for me. I am usually in bed at midnight and set my alarm every morning for 7:30, although I've been known to hit the snooze button more than once on occasion. One of the things I've adjusted to fairly seamlessly is never (or rarely) being alone in the house. When my Mom and Del want to take a vacation, we arrange to have someone here to look after me. My friend Cris was here for 3 weeks (and Dad for 1 overlapping week) in September while Mom
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